I wasn’t prepared for this. No one told me how to take my personality, my intelligence, my accomplishments, my ambition, my ego and put them all behind a gauzy thick wall that mutes most voices and distorts the sounds of everyday life. The siren could be a whistle or a baby screaming or someone’s worn out rear brakes, I won’t know until the ambulance crosses the street in front of me.

I wasn’t prepared for this. No one told me how to stop the waves of self-pity, the dejectedness I feel when I realize that once again I have missed the point of an important conversation or become the target of loved ones’ exasperation with my having heard them wrong one time too many today. Until death do us part skipped the part about the burden of a disability suffered by the partner who doesn’t have it.

I wasn’t prepared for this. No one told me…